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How people's love for Freddie Mercury helped overcome fear of HIV

Freddie Mercury's tragic death – 34 years ago today – led to an outpouring of grief and support for Terrence Higgins Trust. Aside from his phenomenal musical achievements, this is his other great legacy

Image: Queen Productions Ltd

In 1991, for those of us responding to the HIV epidemic, the situation was bleak. It had been nine years since the first UK death from an AIDS-related illness, there was still no treatment which worked and the number of those dying was ever growing. Nine years of rising homophobia and fear of HIV. Some people did not want to even be in the same room as a gay man because of the virus.

Freddie Mercury going public about his HIV diagnosis and then, just a day later, the news of his death, came as an utter shock to people. While there had been tabloid speculation about his health and sexuality, to many Queen fans he had just been Freddie the fabulous rock star frontman. He was by far the most famous British person to die because of HIV. The grief was immediate and immense.

Within days, “Bohemian Rhapsody” was re-released, and it went straight to the top of the charts. It was the Christmas number one single that year, a song that had once defined the excess and brilliance of 70s rock now becoming an anthem of remembrance.

Nick Partridge

At Terrence Higgins Trust, we found ourselves inundated. Donations poured in from Queen fans who wanted to do something – anything – to honour Freddie’s memory.

For years, we had been fighting an uphill battle against fear, prejudice and political indifference. Freddie’s tragic death helped change that. It made HIV real to people who had never imagined it could touch their lives. 

The following spring, Queen donated the royalties from the single to our charity. At that time, it was the largest single donation we had ever received – a million pounds. Until then, we had survived hand-to-mouth, raising what we could and spending it all on urgent services for people living with HIV. That donation gave us something we’d never had before: security. It allowed us to plan, to grow, to create new services.

Advertising helps fund Big Issue’s mission to end poverty
Advertising helps fund Big Issue’s mission to end poverty

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But money wasn’t the only gift Freddie Mercury left behind. Across the country, people stepped forward to volunteer – many of them Queen fans inspired by his courage and his death.

Some joined us at Terrence Higgins Trust in London, others at helplines and support services in local organisations in Manchester, Edinburgh, Brighton, Bristol and beyond. They brought with them energy, empathy, and a determination to make a better future for people living with HIV.

Slowly, that better future has become a reality. Life-saving treatment for HIV arrived five years after Freddie’s death and has advanced leaps and bounds since then. 

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Someone diagnosed with HIV today can take just one pill a day and have a completely normal life expectancy. People on HIV treatment can’t pass it on during sex, because the treatment keeps the virus at such low levels in their body. We also have a pill called PrEP which people who are HIV-negative can take to stop them acquiring HIV. 

Because of all this, the UK has the opportunity to end all new cases of HIV by 2030 – we have all the medical tools we need. But we won’t get there without people right across the country stepping forward to make a difference, like they did after Freddie’s death.

We need people to share the news about how HIV has changed since the 80s and 90s, we need more people to get tested for HIV and we need vital funding for our work, so we can keep supporting people to live well with HIV today. 

One day, we may be able to say that Freddie Mercury’s lasting legacy was not just to change an epidemic, but to help end it. What a fitting final encore that would be.

Sir Nick Partridge was one of the first employees of Terrence Higgins Trust and was its Chief Executive from 1991 until 2013. You can support Terrence Higgins Trust here

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