News

'I started noticing small things': Caring for someone with dementia

Life as a carer for someone with dementia can "sometimes leave you feeling a bit low", Derek told The Big Issue for Dementia Action Week

Margaret and Derek for Dementia Action Week

Margaret and Derek both found support through support groups and activities, but that all ended with the pandemic. Image: Supplied

This Dementia Action Week, around 850,000 people are living with dementia in the UK, and with an ageing population somebody is diagnosed every three minutes. But it doesn’t just affect the person with the condition, it can take a toll on those caring for a loved one.

Now well over a year into the pandemic, people with dementia and their families are still getting to grips with how lockdown impacted their wellbeing.

Derek, 70, told The Big Issue about life as a carer for his wife Margaret, 81, in North Yorkshire’s Northallerton.

Support The Big Issue and our vendors by signing up for a subscription.

Each year, Derek and his wife Margaret would holiday in the Costa del Sol.

“We used to go to a hotel there all the time, we were regulars,” says Derek. “We’d visit before Christmas and just after.

“In October 2017, it was another lovely trip, but I started noticing small things. I thought it’s just us getting old. Returning from the second trip after Christmas, that time is something I will never forget. On our way home Margaret turned to me and said: ‘So, are we going on holiday then?’ I still remember the shock from that so clearly.”

Margaret was diagnosed with Alzheimer’s disease six months later, and was cared for by Derek. The couple both benefitted from support groups and activities.

Derek explains: “Margaret used to get a Side by Side volunteer who would take her out singing every fortnight, she absolutely loved it. I had been going to a carers’ group meeting once a month.”

This all stopped with the pandemic.

“Life as a carer is difficult and there is so much you have to navigate. It can sometimes leave you feeling a bit low,” Derek says.

“I’ve been logging my experiences and suggestions to other carers on my website, dementiaguidance.co.uk. The Alzheimer’s Society have been a huge help. I get a Companion Call every week. They have heard it all! It’s so important people know these services are there. 

“The carers’ group meeting moved online at the start of the pandemic. We now meet twice a week and it’s still absolutely essential for me. It’s a space where you can support one another and give each other helpful advice.”

Derek is also helped by remembering good times from the past. 

“We’ve shared so many fantastic memories together,” he says. “Margaret used to win slogan-writing competitions all the time, it was a hobby of hers. She was fantastic with words and numbers.

“One time she won a Concorde trip to Barbados for us both! It was the first commercial flight on Concorde to Barbados. Another time she won a week’s stay at a hotel in La Manga, Spain. I keep all her competition entries and congratulation letters in a shoe box, there are so many.”

For more information this Dementia Action Week visit the Alzheimer’s Society website: alzheimers.org.uk/get-support. You can also access these Alzheimer’s Society documents: Carers: Looking after yourself factsheet, Communicating factsheet and the Carers Guide on their website.

To sign the petition to #CureTheCareSystem and support Dementia Action Week (17-23 May 2021) visit alzheimers.org.uk/DAW. And for information, advice and support call Alzheimer’s Society Dementia Connect support line (0333 150 345) or visit our website.

Support the Big Issue

For over 30 years, the Big Issue has been committed to ending poverty in the UK. In 2024, our work is needed more than ever. Find out how you can support the Big Issue today.
Vendor martin Hawes

Recommended for you

View all
Gen Z want to buy houses, smoke weed and do crimes, report finds. What does this mean for UK's future?
Generation Z

Gen Z want to buy houses, smoke weed and do crimes, report finds. What does this mean for UK's future?

Post-Brexit border checks to cost £4.7bn. Here's how that money could be better spent
The white cliffs of Dover, where Brexit border controls will come into force
Brexit

Post-Brexit border checks to cost £4.7bn. Here's how that money could be better spent

Archbishop of Canterbury joins growing calls for end to 'cruel' and 'immoral' two-child benefit cap
archbishop of canterbury
Two-child benefit cap

Archbishop of Canterbury joins growing calls for end to 'cruel' and 'immoral' two-child benefit cap

Rewilding is bringing creatures great and small back to UK – but a lack of funds is holding it back
Rewilding

Rewilding is bringing creatures great and small back to UK – but a lack of funds is holding it back

Most Popular

Read All
Renters pay their landlords' buy-to-let mortgages, so they should get a share of the profits
Renters: A mortgage lender's window advertising buy-to-let products
1.

Renters pay their landlords' buy-to-let mortgages, so they should get a share of the profits

Exclusive: Disabled people are 'set up to fail' by the DWP in target-driven disability benefits system, whistleblowers reveal
Pound coins on a piece of paper with disability living allowancve
2.

Exclusive: Disabled people are 'set up to fail' by the DWP in target-driven disability benefits system, whistleblowers reveal

Cost of living payment 2024: Where to get help now the scheme is over
next dwp cost of living payment 2023
3.

Cost of living payment 2024: Where to get help now the scheme is over

Strike dates 2023: From train drivers to NHS doctors, here are the dates to know
4.

Strike dates 2023: From train drivers to NHS doctors, here are the dates to know