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Onwards and Sideways writer Paul Mayhew-Archer: ‘I fight Parkinson’s by looking for ways to find it funny’

Parkinson's is not one set of symptoms and is often a source of misunderstandings, says the writer behind the new film with Rhys Ifans and Laura Linney

Rhys Ifans and Laura Linney in Onwards and Sideways. Photo courtesy of Hilltop Screen / BBC / John Gore Studios. Copyright: Hilltop Screen (One) Ltd

Onwards and Sideways stars Rhys Ifans and Laura Linney as Tony and Emma, two people with Parkinson’s for whom their diagnosis starts a new and unexpected new chapter in life. The film’s writer, Paul Mayhew-Archer, who has credits including The Vicar of Dibley – and who also has a role in the film – was diagnosed with Parkinson’s in 2011 when he was in his late 50s. Here, he explains how he hopes the film can raise awareness of the condition. 

I am grateful to Parkinson’s for giving me experiences that I would not have missed for the world, one of them being the chance to make this film.

The story is about two people who are diagnosed with Parkinson’s on the same day. They meet and in time, we see their shared values, sense of humour and approach to life which is being threatened by something which is superhuman.

Parkinson’s is a strange illness. It has 46 symptoms and people are affected by it in all sorts of different ways. One of the purposes of this film is to illustrate what some of these look like. There are lots of misunderstandings – a key one being that people tend to think you have Parkinson’s if you have a tremor. Actually, 30% of people with the disease don’t.

My whole belief about Parkinson’s is that you have to find a way of combatting it. Some people find it in exercise or bursts of creativity; I find it in the desire and determination to find it funny. I remember when my neurologist told me that I had Parkinson’s. My wife said, “How do you know it’s Parkinson’s?”, and he replied “Various different things. For instance, your arm doesn’t swing when you walk and your face is frozen, you seem to be finding it quite difficult to smile.”

I remember saying, “That could be because you’ve just told me I’ve got Parkinson’s.” I try to see it from that point of view, rather than the traditional sense of, ‘Oh dear it’s a terrible disease’.

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When I was diagnosed I was told I could expect five good years. I was a bit shocked because I didn’t know how long Parkinson’s lasted, but five years sounded like a very short time to someone in their late 50s. In fact, I’ve had 15 years so far. The film is about human resilience and the ability to find the humour and possibilities while having Parkinson’s. People do extraordinary things to combat illness; we try to fight it with everything we’ve got.

I also want to encourage people to understand the disease. I want to raise awareness about its different aspects and manifestations. It’s not just about a tremor but about every aspect of life. I want to make people aware of that so they can ask themselves if they might have it.

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Parkinson’s is becoming more challenging, and I’m finding that memories of the filmmaking experience, which was so happy, are sustaining me in these days when life is becoming more difficult.

I am determined to remain positive, but I do understand that for some people, that is extremely difficult. And all I can say really is, if you are obsessed and distressed by Parkinson’s, at least keep going out, keep engaging with society.

Parkinson’s will try to cut you off. It will take away your smile; it will take away your voice, take away your forms of communication  – but don’t help Parkinson’s by cutting yourself off.

Onwards and Sideways is released in cinemas from 6 November and on BBC iPlayer and BBC One later in the year. Book tickets: onwardsandsideways.co.uk



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